Benefits to Help Family with Daughter’s Rare Condition

Only 200 known cases of Trisomy 14 Mosaic known since 1970

by Jake Dilley
Reporting in Sullivan

Faith Lutheran Church will sponsor medical benefits for Sullivan’s Wagner family in the next two weekends, following Presley Wagner, six month old daughter of Andy and Shelbi, being diagnosed with the rare disease Trisomy 14 Mosaic. With only 200 known cases in the world since 1970, it is a lifelong syndrome in which Presley has already taken on some traits, such as cleft hand, conductive hearing loss, slow respiratory development and short/little stature. And while Presley currently sees doctors in Decatur, Springfield, Champaign, and St. Louis, the family doesn’t know what additional traits she may exhibit in the future.

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